Littlemisshannah.com
| Top hannah sites |
- Title
- Little Miss Hannah - Fight against Neuronopathic Gaucher's Disease type 2/3 — Our Fight against Gaucher's Disease type 2 or 3
- Meta Description
- Hannah Ostrea's journey and fight against neuronopathic Gaucher's disease, an extremely rare and fatal life-limiting genetic metabolic disease. As a result of raising a medically fragile child with this rare disease diagnosis, I have become a mom on a mission for rare disease awareness, pediatric hospice and palliative care, and forever the fighter for a cure for Neuronopathic Gaucher's disease. Hoping to connect all families of children with Gaucher's type 2 and type 3 together.
- Meta Keywords
- gaucher's disease, gaucher's disease type 2, gaucher's disease type 3, rare disease, childhood rare disease, neuronopathic, d409, 84gg, lysosomal storage disease, world rare disease day, terminal illness, siblings
| Server | Apache |
| Expires | Thu, 19 Nov 1981 08: |
| X-Pingback | http://littlemisshan |
| Cache-Control | no-store, no-cache, |
| Pragma | no-cache |
| Last-Modified | Thu, 05 Nov 2015 21: |
| Keep-Alive | timeout=15, max=100 |
| Connection | Keep-Alive |
| Transfer-Encoding | chunked |
| Content-Type | text/html; charset=U |